See below for programs and local contacts, national resource centers, and federal contacts.
State-Level Programs
Program |
Description |
Resources |
|---|
Medicaid LTSS and HCBS | Medicaid is the primary payer across the nation for LTSS. Medicaid allows for the coverage of these services through several vehicles and over a continuum of settings, ranging from institutional care to community-based LTSS. Medicaid beneficiaries are also eligible to receive HCBS in their own home or community rather than institutions. These programs serve a variety of targeted population groups, such as older adults, people with intellectual or developmental disabilities, physical disabilities, and/or mental illnesses. | Contact your state Medicaid Agency using the Directory of Medicaid Directors |
|---|
State Long-Term Care (LTC) Ombudsman Programs | States’ LTC Ombudsman programs work to resolve problems related to the health, safety, welfare, and rights of individuals who live in LTC facilities, such as nursing homes, board and care and assisted living facilities, and other residential care communities. Ombudsman programs promote policies and consumer protections to improve long-term services and supports at the facility, local, state, and national levels. |
Overview of LTC Ombudsman Program Contact: 800-677-1116 to be connected with local Ombudsman program or visit the
LTC Ombudsman Locator. |
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...is blind or vision impaired | Provide written materials in Braille and/or through spoken word |
No Wrong Door |
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|
Protection and Advocacy Systems (P&As) | P&As are a nationwide network of congressionally mandated agencies that provide a range of legal advocacy services to protect the rights of individuals with disabilities (e.g., those denied access to a service; control or choice of a service; opportunity to participate in activities). P&As address allegations of neglect or abuse and conduct monitoring and investigations of facilities. |
State Protection & Advocacy Systems |
|---|
|
Centers for Independent Living (CILs) | CILs offer the following core services (at a minimum): information and referral; independent living skills training; peer counseling; individual and systems advocacy; transition and diversion from nursing homes and other institutional settings back into the community; and transition of youth to postsecondary life. |
Directory of Centers for Independent Living (CILs) and Associations |
|---|
|
Statewide Independent Living Councils (SILCs) | SILCs coordinate activities with other entities in the State that provide services similar to or complimentary to independent living services, such as entities that facilitate the provision of or provide long-term community-based services and supports. |
List of Centers for Independent Living by State (CILs) |
|---|
|
State Grant for Assistive Technology (AT) Programs | This program makes AT devices/equipment and services available ranging from “low tech” (e.g. built‐up handle on spoon to improve ability to grasp) to “high tech” (e.g. computers controlled with eye movement); consumer electronics like home automation solutions, telemedicine technologies, and technologies to address social isolation; and services to get and use devices, including assessment, customization, repair, and training. |
Assistive Technology
|
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|
State Councils on Developmental Disabilities (DD Councils) | Fund demonstration projects and engage in partnerships to promote greater efficiencies in services and supports for people with DD and their families. Councils build leadership skills to enhance the ability of individuals with DD and their families to be stronger advocates. |
State Councils on Developmental Disabilities |
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National Resource Centers
Program | Description | Links |
|---|
University Centers for Excellence in Developmental Disabilities (UCEDDs) | UCEDDs conduct interdisciplinary training, community services, research, and knowledge translation in a wide array of areas, including emergency management. |
Overview of UCEDDs
Contacts by Topic Area |
|---|
ADA National Network | The ADA National Network funds 10 regional centers for providing information, training, and technical assistance to individuals, businesses, and agencies with rights and responsibilities under the ADA. |
ADA National Network
Regional Contacts |
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|
The Model Systems Knowledge Translation Center (MSKTC) | MSKTC is a national center that helps facilitate the knowledge translation process to make research meaningful to those with Spinal Cord Injury, Traumatic Brain Injury and Burn Injury. |
MSKTC Website |
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|
National Center on Advancing Person-centered Practices and Systems (NCAPPS) | The Health Care Person-Centered Profile communicates a person’s wants and needs if they are hospitalized without the direct support of their caregivers, family, neighbors, or friends. The two page tool can be used to capture brief and vital information about the person’s health status and Person-Centered Profile, a one-page brief description of the things that can assist medical staff in providing more tailored and person-centered care. A one-page instruction sheet and samples are provided. |
NCAPPS COVID-19 Resources |
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Federal Contacts
Program | Descriptiom | Resources |
|---|
Administration for Community Living (ACL) | ACL provides federal grant funding to government and nonprofit organizations for a range of programs that provide access to services and support the functional needs of older adults and individuals with disabilities so that they can remain in their homes and communities. |
Administration for Community Living |
|---|
Administration for Children and Families (ACF) | ACF promotes the economic and social well-being of children, families, individuals and communities with leadership and resources for compassionate, effective delivery of human services. |
Administration for Children and Families |
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|
Centers for Medicare & Medicaid Services: Medicaid | Medicaid provides health coverage to millions of Americans, including eligible low-income adults, children, pregnant women, elderly adults and people with disabilities. Medicaid is administered by states, according to federal requirements. The program is funded jointly by states and the federal government. |
Medicaid.gov |
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|
Office of the Assistant Secretary for Preparedness and Response (ASPR): Division for At-Risk Individuals, Behavioral Health & Community Resilience (ABC) | ASPR ABC provides policy leadership, subject matter expertise, and coordination to internal and external partners to ensure that the access and functional needs of at-risk individuals, behavioral health, and community resilience are integrated in the public health and medical emergency preparedness, response, and recovery activities of the nation. |
At-Risk Individuals Resources |
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For questions about this document, please
contact ASPR ABC at abc.info@hhs.gov.
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